It is two years since Luke was first hospitalised and subsequently diagnosed with Epilepsy, in some ways it feels like a lifetime ago - in others that life changing period is just like yesterday. "How's Luke?" is a common enough question from family, friends and acquaintances who have seen his FB page or read the … Continue reading “What if…”
It has been almost a year since I have written a post on this page, and in a way I want to apologise but the reality is that it just didn't feel right to continue the blog in the same tone as before. When I wrote the last post in January 2017, I had nothing … Continue reading Still here…
Always Have Hope!
I'm not really sure how to start this post, probably because it's not one that I really imagined writing...just yet anyway - but here it is. As you may have seen in the October post, things were looking positive for Luke and I am happy to report this has continued. Luke was diagnosed with Epilepsy … Continue reading Always Have Hope!
Luke’s Disney Magic
Today marks a very special milestone for Luke, because today he is one month without any day time seizures....and two weeks with no Nocturnal seizures, this is huge! It's taken 7 months and various combinations of medications but finally we are all starting to breathe again as Luke's current doses of Lamictal, Vimpat & Frisium … Continue reading Luke’s Disney Magic
Normality (for now!)
Luke is in his 4th week back in school following the Summer holidays and so far he is doing great. We did have a small behavioural incidence on the first week, but I think the excitement and nervousness of going back to school was a little overwhelming. He seems to be working hard in class, … Continue reading Normality (for now!)
10 things I have learned about Epilepsy
I apologise in advance for how long this post is...... Over the past 6 months I have been educating myself on all things Epilepsy with a special interest in Paediatric Frontal Lobe Epilepsy and a sub specialisation in Refractory Epilepsy (Yawn!). I know Luke's extended family and friends are worried about him, maybe don't like … Continue reading 10 things I have learned about Epilepsy
More Clusters, ineffective hospitals, irritable mum!
Just a short and sweet little post, before I forget to journal this weeks events - for myself as much as anything else! If you have been following the blog, you will know Luke's sister had an EEG done just to rule out any epileptic activity and I am delighted to report that the EEG … Continue reading More Clusters, ineffective hospitals, irritable mum!
Big Sister Big Love
Epilepsy is hard, right? Not just for the sufferer but everyone around them. My daughter had developed what I would call a nervous "tick", she would open her eyes really wide, completely unknown to herself and occasionally does this jerking movement, mostly at night. Anyway's I mentioned it to Luke's Neurologist some time back who … Continue reading Big Sister Big Love
Epilepsy Surgery?? Really!
Since my last post, unfortunately we haven't had the clear run we were hoping for. On day 12 of retrying Trileptal Luke came out again in a drug rash and therefore we had to stop him taking it immediately. To say that my husband and I were devastated is an understatement! he had gone from … Continue reading Epilepsy Surgery?? Really!
Mixed Emotions -Good Days & Better Days
Ok so today I am a little bit more cautiously optimistic. Since my last post, (which I will be honest was written on a not very good day!!) quite a few things have happened. We have had two appointments with a Clinical Psychologist who gave both my husband and I some really good advice on … Continue reading Mixed Emotions -Good Days & Better Days