When the drugs don’t work

From speaking to parents of other children with epilepsy, researching online and consulting with Luke's Neurologist, I quickly learned that it can be very tricky to get the medication right in order to completely stop Luke's seizures, to reach the ultimate goal of Luke becoming seizure free. Luke was initially prescribed Frisium and Trileptal - … Continue reading When the drugs don’t work

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The practicalities of living with Epilepsy

So we are pretty new to the world of epilepsy, and what this is really going to mean for our family.  Firstly we know that Luke's epilepsy is not photosensitive, which as a 6 year old boy who loves his Playstation this is  a huge positive.  Luke has never had a Tonic Clonic seizure, the … Continue reading The practicalities of living with Epilepsy