It has been almost a year since I have written a post on this page, and in a way I want to apologise but the reality is that it just didn't feel right to continue the blog in the same tone as before. When I wrote the last post in January 2017, I had nothing … Continue reading Still here…
I'm not really sure how to start this post, probably because it's not one that I really imagined writing...just yet anyway - but here it is. As you may have seen in the October post, things were looking positive for Luke and I am happy to report this has continued. Luke was diagnosed with Epilepsy … Continue reading Always Have Hope!
Today marks a very special milestone for Luke, because today he is one month without any day time seizures....and two weeks with no Nocturnal seizures, this is huge! It's taken 7 months and various combinations of medications but finally we are all starting to breathe again as Luke's current doses of Lamictal, Vimpat & Frisium … Continue reading Luke’s Disney Magic
Luke is in his 4th week back in school following the Summer holidays and so far he is doing great. We did have a small behavioural incidence on the first week, but I think the excitement and nervousness of going back to school was a little overwhelming. He seems to be working hard in class, … Continue reading Normality (for now!)
Just a short and sweet little post, before I forget to journal this weeks events - for myself as much as anything else! If you have been following the blog, you will know Luke's sister had an EEG done just to rule out any epileptic activity and I am delighted to report that the EEG … Continue reading More Clusters, ineffective hospitals, irritable mum!
Just a little update, as it has been a few weeks since I posted on here. It will soon be 5 months since Luke was diagnosed with Frontal Lobe Epilepsy, and this week has been a tough one. Last night Luke had a lot of cluster seizures, 22 Complex Partial's in total from 7.40pm until 7.30am, … Continue reading Scary Cluster Seizures
Since my last post, unfortunately we haven't had the clear run we were hoping for. On day 12 of retrying Trileptal Luke came out again in a drug rash and therefore we had to stop him taking it immediately. To say that my husband and I were devastated is an understatement! he had gone from … Continue reading Epilepsy Surgery?? Really!