Luke is in his 4th week back in school following the Summer holidays and so far he is doing great. We did have a small behavioural incidence on the first week, but I think the excitement and nervousness of going back to school was a little overwhelming. He seems to be working hard in class, … Continue reading Normality (for now!)
I apologise in advance for how long this post is...... Over the past 6 months I have been educating myself on all things Epilepsy with a special interest in Paediatric Frontal Lobe Epilepsy and a sub specialisation in Refractory Epilepsy (Yawn!). I know Luke's extended family and friends are worried about him, maybe don't like … Continue reading 10 things I have learned about Epilepsy
Just a little update, as it has been a few weeks since I posted on here. It will soon be 5 months since Luke was diagnosed with Frontal Lobe Epilepsy, and this week has been a tough one. Last night Luke had a lot of cluster seizures, 22 Complex Partial's in total from 7.40pm until 7.30am, … Continue reading Scary Cluster Seizures
Since my last post, unfortunately we haven't had the clear run we were hoping for. On day 12 of retrying Trileptal Luke came out again in a drug rash and therefore we had to stop him taking it immediately. To say that my husband and I were devastated is an understatement! he had gone from … Continue reading Epilepsy Surgery?? Really!