Epilepsy is hard, right? Not just for the sufferer but everyone around them. My daughter had developed what I would call a nervous "tick", she would open her eyes really wide, completely unknown to herself and occasionally does this jerking movement, mostly at night. Anyway's I mentioned it to Luke's Neurologist some time back who … Continue reading Big Sister Big Love
Category: Parenting
Scary Cluster Seizures
Just a little update, as it has been a few weeks since I posted on here. It will soon be 5 months since Luke was diagnosed with Frontal Lobe Epilepsy, and this week has been a tough one. Last night Luke had a lot of cluster seizures, 22 Complex Partial's in total from 7.40pm until 7.30am, … Continue reading Scary Cluster Seizures
15 in 24 hours
15 Seizures in 24 hours: Life with Epilepsy
The practicalities of living with Epilepsy
So we are pretty new to the world of epilepsy, and what this is really going to mean for our family. Firstly we know that Luke's epilepsy is not photosensitive, which as a 6 year old boy who loves his Playstation this is a huge positive. Luke has never had a Tonic Clonic seizure, the … Continue reading The practicalities of living with Epilepsy
It’s all about Luke
It's been over a month now since Luke's diagnosis of epilepsy. He has always been a lively child to say the least. The youngest of two children, I always said he never walked; he went straight from crawling to running. He broke endless toys, smashed a tv by flinging a toy gun at the screen … Continue reading It’s all about Luke
