More Clusters, ineffective hospitals, irritable mum!

Just a short and sweet little post, before I forget to journal this weeks events - for myself as much as anything else! If you have been following the blog, you will know Luke's sister had an EEG done just to rule out any epileptic activity and I am delighted to report that the EEG … Continue reading More Clusters, ineffective hospitals, irritable mum!

Big Sister Big Love

Epilepsy is hard, right?  Not just for the sufferer but everyone around them.  My daughter had developed what I would call a nervous "tick", she would open her eyes really wide, completely unknown to herself and occasionally does this jerking movement, mostly at night.  Anyway's I mentioned it to Luke's Neurologist some time back who … Continue reading Big Sister Big Love