Just a short and sweet little post, before I forget to journal this weeks events - for myself as much as anything else! If you have been following the blog, you will know Luke's sister had an EEG done just to rule out any epileptic activity and I am delighted to report that the EEG … Continue reading More Clusters, ineffective hospitals, irritable mum!
Big Sister Big Love
Epilepsy is hard, right? Not just for the sufferer but everyone around them. My daughter had developed what I would call a nervous "tick", she would open her eyes really wide, completely unknown to herself and occasionally does this jerking movement, mostly at night. Anyway's I mentioned it to Luke's Neurologist some time back who … Continue reading Big Sister Big Love
Scary Cluster Seizures
Just a little update, as it has been a few weeks since I posted on here. It will soon be 5 months since Luke was diagnosed with Frontal Lobe Epilepsy, and this week has been a tough one. Last night Luke had a lot of cluster seizures, 22 Complex Partial's in total from 7.40pm until 7.30am, … Continue reading Scary Cluster Seizures
The Epilepsy Diagnosis
Monday 7th March 2016, I arrived at Temple Street Hospital Accident & Emergency with Luke, my 6 year old son after a sleepless night of observing his seizure activity. My wonderful cousin is a Neurologist in Northern Ireland, and although he treats adults not children had been a fantastic resource for advice in these early … Continue reading The Epilepsy Diagnosis