Since my last post, unfortunately we haven't had the clear run we were hoping for. On day 12 of retrying Trileptal Luke came out again in a drug rash and therefore we had to stop him taking it immediately. To say that my husband and I were devastated is an understatement! he had gone from … Continue reading Epilepsy Surgery?? Really!
Ok so today I am a little bit more cautiously optimistic. Since my last post, (which I will be honest was written on a not very good day!!) quite a few things have happened. We have had two appointments with a Clinical Psychologist who gave both my husband and I some really good advice on … Continue reading Mixed Emotions -Good Days & Better Days
From speaking to parents of other children with epilepsy, researching online and consulting with Luke's Neurologist, I quickly learned that it can be very tricky to get the medication right in order to completely stop Luke's seizures, to reach the ultimate goal of Luke becoming seizure free. Luke was initially prescribed Frisium and Trileptal - … Continue reading When the drugs don’t work